Running from Heaven to Hell & Back Northern Standard Carrickmacross News Thursday 21st May
I’m 18 and I’ve lived in Carrickmacross all my life. My family are all from Carrickmacross, Donaghmoyne or the surrounding areas. I’ve always been drawn to working with children. I lost a close family friend Lee when I was very young and recently lost his brother Ryan after a very brave battle against a rare disease. My beautiful godchild who is five also has Spina Bifida. All of which has helped fuel my need to help childrens’ charities.
I completed a fundraiser as part of my 18th birthday celebrations for the Children’s University Hospital , Temple Street in Dublin, raising €3,000 and collecting over 70 toys for the children across the wards, because Ryan attended Temple Street and my godchild Ellen is still an outpatient.
I’m in the middle of completing my end of year exams for Nursing Studies in Cavan Institute and hope to study Children’s Nursing in Britain this September, depending on results. I then hope to specialise in oncology nursing.
My inspiration for my career path first came when I saw Aoibheann’s Pink Tie on Secret Millionaire. It was set up in 2010 by Jimmy Norman and Mick Rochford after the passing of Jimmy’s beautiful daughter Aoibheann at the age of seven. In the words of Jimmy, ‘Aoibheann fought a very courageous battle against cancer’.
I watched a video not so long ago which interviews children who have cancer. They were all asked what they wanted to be when they grew up. Something one of the children said never stops playing in my mind: ‘I don’t know what I wanna be when I grow up, but I just wanna grow up’.
This is when I set out to complete both a mentally and physically enduring fundraiser for St John’s Ward in Our Lady’s Children’s Hospital Crumlin in Dublin and Aoibheann’s Pink Tie. Next month I’m completing the 10km Women’s Mini Marathon, a 10,000ft Skydive and the 12km Hell & Back, all in under three weeks. Every week four parents in Ireland are told ‘your child has cancer’. That’s four families whose lives are put on hold while they begin to fight for their child’s life!
St John’s Ward in Crumlin is the national medical care centre for every child with cancer across Ireland. They provide the medical expertise and exceptional care needed for children faced with this cruel disease. The continuous funding has allowed for single isolation rooms for every patient. It has also meant that every patient has an en-suite and another bed for a parent or family member to stay for what can be days, weeks and even months.
Aoibheann’s Pink Tie is there for any kind of practical support for children and their families with cancer. Jimmy Norman wants the charity to allow parents to ‘breathe and go look after their children’. They provide Chemo Ducks for the children which is a cuddly toy with a ‘freddie’, pyjamas and a bandana similar to them which gives children the chance to understand their treatment in a child-friendly way.
They are also credited for providing children with Hickman Dry suits. A child can have a Hickman line (‘freddie’) in for years meaning they are not allowed to have baths or go swimming. These suits provides the children with the opportunity to do both. Costing €300 each for these specialised suits, Aoibheann’s Pink Tie supplies them to any child on St John’s Ward. Financial support is also provided by APT helping families pay for items such as mortgage bills, accommodation fees, and car park fees. Their support is endless!
Through this I’ve not only wanted to complete these events, I wanted to go out there and see what St Johns Ward and Aoibheann’s Pink Tie has meant for the children and their families who are going through these battles. I contacted Susan Brown from Castleblayney whose beautiful two year-old son Ceejay was diagnosed with leukaemia in September. She explained to me her appreciation towards both charities saying: ‘When a child is fighting cancer they need to know they have a team fighting with them and for them. With St John’s ward and Aoibheann’s Pink Tie we know Ceejay has an army fighting for him every step of the way’.
These three events will put me through my paces but it doesn’t even compare to a day in the life of a child with cancer. Thank you to all who have supported so far including Vanity Nightclub who have covered all registration fees and to Sparkle Beauty Clinic for their continued support.
All donations welcome. Find the event on facebook or simply donate online at www.idonate.ie by typing in ‘Running from Heaven to Hell & Back’. Sponsorship cards are also available and we’re on the lookout for anyone who’d like to join our team for the Mini Marathon or Hell & Back. Contact me at firstname.lastname@example.org.
Because children can’t fight cancer alone!